We’re delighted to hear that you like our #ShowYourSeams campaign and of course we’d be more than happy for you to adapt the idea for your supporters in China.
If we can help in any way then please do let us know – I’ve cc’d in Mike Bartlett who is part of the DEBRA International Marketing Advisory Group, if you’re not already a part of it then it may be worth joining them as it’s a group designed to share best practice and resources.
Good luck with #ShowYourSeams!
PR & Communications Manager
DD: 01344 467787
Mob: 07880 030808
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) –
a painful genetic skin blistering condition which, in the worst cases, can be fatal.
Dear DebRA-UK friends
I'm the founder of DebRA China. We registered as NGO in 2014 and is the only NGO working for EB patients in China. When we were looking for ideas to advocate for EB and DebRA, we found the ShowYourSeams compaign and thought it is an excellant idea. Now we are preparing for a compaign for the 2/29 2016 (rare disease day). We prefer to copy the idea of ShowYourSeams in China. May you agree on our 'copying'?
What we will do in details (maybe we will add something later):
Assign a Chinese name for the compaign
Ask people to share photo in Wechat and weibo (Chinese social media)
We will NOT ask people to donate because we are not allowed public fundraising. But if we can find a cooperator, we will ask for donation.
generate poster and selfie sign, similar to you but will be Chinese
Template press release in Chinese
I cann't go into much detail because we have not started the detail planning.